Two of the 4 children in this sweet family live with a very rare, complicated disease called Cystinosis. Their eldest has already had two kidney transplants. Dad is the sole provider and works constantly to try to keep up with everything, but it is still difficult. They recently moved so he could quit traveling and be home more to help because their 7-year-old daughter still requires a lot of hands-on care. She has a g-tube and doesn’t eat orally, so all of her food/meds are via tube. Let’s help out this great family that is working so hard to navigate these difficult trials. Please click on their Amazon Wishlist link and purchase items for their Christmas!